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Toddler Is 1 of Only People in World With Ultra-Rare Disease
This Young Man Is One Of Two People In The World Coping With A Rare, Nameless Disease | NBC News
Toddler with ultra-rare disease released from Boston hospital
"No cure:" Toronto toddler battles ultra-rare genetic disorder
Only 22 Kids In The World And My Daughter Got This Rare Diseases
Meet One of 20 Kids in the World Diagnosed with Rare Disorder
Lockport boy living with ultra-rare disorder needs used shoes
Boy with ultra-rare disease begins groundbreaking gene therapy
‘Itch like crazy:’ Edmonton boy battles ultra rare disease
Metro Detroit family fears 2-year-old with very rare disease will never have normal life
Mariah: THAP12 Mutation
One Family Loses Two Kids To Rare Disease
